I’m putting this here just for the sake of interest. If you have CFS or Fibro, or wonder if you do, and you have a hard time describing your fatigue to others, here’s a scale that I found in a questionnaire sent to me from Stanford (where I went for some treatment a year ago).
It might be useful for you if you’re having trouble describing what you mean when a doctor is asking you, “What do you mean by ‘really tired’?”
The blue dot is my score. I look down to the bottom of the page. I love that: normal. I really miss normal. I miss being able to exercise.
I loved dancing. I would dance for an hour or more, every day, just bopping around the room to music. Worked up a great sweat, kept all the joints lubricated, and it was just awesomely fun. The last time I tried to dance like that was about two months ago, when Greg got a new wireless speaker and I was testing out its capabilities while everyone was at work/school. The music sounded great. I started moving…carefully. I got into it. Memories came flooding back! I loved it. By the end of the second song I was exhausted. I had to stop everything I was doing and go sit down, and stay there until evening. I slept the whole next day.
It’s scary knowing that I’ve been sick for about 11 years, and slowly moving down the scale every year. Will I hit 1 this year? Next year? What about 0? It’s terrifying.